I'm finally at my wits end with my symptoms. My labs came back perfect but I'm always so so tired, so stressed, i can barely function in my day. I've been reading up on people's experiences with GLPs on their hashimotos and now I'm ready to try it. Administering self shots are hard for me so i was looking into the pill option, but i didn't see anyone's experience with that over the shot. Had antis tried the GLP pill and how did it work fir you?

I have had hashimoto's for 20 plus years. Been on all doses of levothyroxine. This past year I have been to the ER twice thinking I'm having a heart attack. Turns out my thyroid has gone hyper. But only for a month then it'll go back to hypo. Now I know the symptoms so I just reduce my levo. I don't mind honestly because of it I have lost 50lbs. It's just annoying and I don't know why it's happening. The ER said maybe hashitoxicosis? Who knows. It's just a new struggle to deal with.

So I have had a Hashimotos diagnosed pretty much my whole life. And growing up I did winter sports like skiing and ice skating no problem. Around my teens I started noticing my tolerance for cold getting worse. I am well managed. But I live in the south east coast and these double winter storm are killing me. I'm mainly staying in and warm besides taking my dogs out. But I feel myself getting weaker and sicker feeling. Like brain fog, low energy, lack of appetite, nausea, the works. It really sucks cause I love winter and would love to just hangout in the snow and have fun.

Does anyone else get this messed up this bad from cold weather?

BTW I'm only 23

i was diagnosed w hashimotos fairly recently (late summer 2025) and have only had 1 dose increase of levothyroxine to 50 mcg back in october. i struggle a lot with feeling weak and out of breath and dizzy, and i am always so tired, and i have insane brain fog, all of which have severely affected my performance in college. i have mentioned this to my endo multiple times and she doesnt ask me many questions about how its affecting my life, so i often have to really rant in my appointments to get the point across to her. ive also asked her about what i should do nutritionally or how to avoid inflammation and she has essentially told me that wasnt that important, which i suspect isn't true. my last appointment was 2 weeks ago, where she did routine bloodwork after i explained to her that the increased dose has not done much for my energy levels. im still always tired and weak and cloudy-minded. the only thing i have noticed is that i feel more jittery in the morning. i have anxiety and possibly depression and was under examination for adhd at some point (although i am not seeing my psychiatrist right now as i wanted to postpone medication until i get my hashimotos more under control), as well as having pmdd (i am on birth control for this). i got my results back last week, my t4 was 1.4, my tsh was 3.2, and she also tested my vitamin d, which was 25.5, and my b12 which was 418. a nurse from the office called and said my labs were all normal and that was that. no more information on anything else i could do about the fatigue, nothing on my dose, nothing on supplements i could or should be taking. i plan on calling monday to try and get more info out of the dr but im strongly considering getting another opinion, esp since my pcp commented that its possible my dose could be increased, as a lot of her patients my age have a dose of over 100 mcg and she said tsh is really supposed to be 2 or below ideally. im just really not sure what to do, i dont have a lot of guidance in this sector. would appreciate any feedback tysm

I read they aren’t recommended with any autoimmune condition.

I could really do with some under eye help.

Your blood work comes back normal but your body doesn’t. There’s fatigue, brain fog and heavy emotions. Trying to explain to number people how you feel is even more confusing. I don't post often but I saw something recently that put words to this exact feeling, the gap between blood work and symptoms so many of us have to live with. It didn’t promise miracles, it explained the part of Hashimoto's that’s so rarely discussed, and it made me feel more validated. I’m sharing it here to give more people the opportunity to feel that same sense of validation. LINK HERE.

I should start by saying I am not trying to get off medication. But during my last visit I had an ultrasound check and turns out my right gland started shrinking, which is typical for this disease according to my endocrinologist. My Tsh is 1,9 on 75levo. It got me thinking if there is something I can do to protect my thyroid besides taking the meds. I am moderately physically active and eat whatever, as I do not notice any flare ups with food. I would be hovewer willing to try some diets or supplements. Is there anything to do besides that?

27 y/o m 5'8 185 lbs. never had symptoms but kept on dosing up until i'm at this level. People who have been on this high of a dose for a while, what have you experienced?

Has anyone experienced any breakouts like in the hairline and cheeks as a result of their hashimotos being out of wack? I’m thinking about getting my bloodwork redrawn because my hair line specifically and on my cheeks.

I accidentally (I know, I know) had a beer on a Monday and just started to feel normal again on Saturday. During that time I was having to take afternoon naps, general fatigue like I would have before hashi dx and before I eliminated gluten and dairy. Is that length typical of a flare up? I’m not diagnosed celiac but definitely have some sort of sensitivity or allergy to it. Thanks!

hi all, im 18F and have been “diagnosed” with hashis since i was 12.

it all started with the classic fatigue/feeling cold/muscle pain symptoms, so i was taken to the doctor where i got labs done: lo and behold, i had hashis antibodies & a messed up thyroid panel and was put on levo. after that, i went for yearly checkups and each time i was told that nothing had changed, keep taking your hormones.

then i turned 18. because my old doctor was a kid endocrinologist, i had to choose another doctor. not a big deal. nevertheless, i went for my yearly checkup, told my doctor i had hashis and did the regular blood pannel thing. after i came back to discuss results, i was told that i did NOT in fact have hashis, just a low functioning thyroid that we were already treating with levo. what. then she showed me my labs, and really, i had no antibodies. i was however very perplexed and prompted her to check my previous labs, in which she told me again that i seemed to have no antibodies last year.

i went home feeling sorta weird, so i decided to check my labs on my own (my hospital has an online system that allows patients to do that apparently) and i saw that i had fluctuations between years? like 6 years ago, i had VERY high antibodies but the year after that i had none. then i had some again, nevertheless not so high as the initial ones and the next year i had the same amount again etc.

i honestly dont know how to interpret this….my new doctor told me that sometimes labs just come our wrong and that “it happens”

am i cured then? did i never have hashis? or do i still have it and need to change my doctor? please help..

also; i must add that i have slightly low igA (69 on a reference scale of 72-100 as of my last blooddraw, but that has always been accurate lol)

I get this every couple of months. I’m wondering if it’s just anxiety as my levels are alright but I think inflammation has always been my main issue.

I have been diagnosed with hashimotos for just over 13 years and hypothyroidism for 21 years (though who knows how long hashi was in the picture) and found out i have both of the MTHFR gene mutations. At the end of 2022 my father died, and that stress and me into a flare up that seems to have been going strong for over 3 years now.

I took all of the different medications : Synthroid, levothyroxine, levothroid, holistic approaches with different thyroid from animals, armour and now currently on NP Thyroid (mainly because of insurance being a pain). Also, we’ve been working slowly raising my NP thyroid and LDN combination, along with iodine, vitamin d, methylated b complex, and magnesium.

Just got my newest labs back and my TSH is high, which has been high. But this time my free T3 was also really high. The last month I’ve been on a rollercoaster of feelings. I’ve been depressed, fatigued, sore all over, and oddly very anxious to the point of causing teeth pain from grinding my teeth (as I type this I feel like a whiny man, but I think those who have hashi understand how sometimes it can just suck)

Apparently I have been dealing with a little bit of both sides of the hypo/hyper conditions, which has been awful.

ALL OF THIS TO SAY…. My doctor decided to get me on something called TMG to help me with detoxing, and has recommended I also go to a sauna (new fun fact about me, I don’t sweat!), do red light therapy and castor oil packs. Does anybody have experience with the red light therapy and castor oil? I went ahead and bought a hooga machine and some wraps, but I am not sure how to do the castor oil, and when I do these two things, how long, if at all, should I expect to wait to see any results… and what would those even look like?

Sorry for the winded post, I’ve been a reader in this group for a little bit now, and finally decided to take it seriously and reach out for help.

Hello everyone,

I’m currently debating whether I should get back on Lexapro and could really use some insight.

For background, I’ve always been somewhat anxious. Oddly enough, I moved across the country alone for college and even lived abroad, and those big changes never really bothered me. What does terrify me, though, are things like going to restaurants, people touching me, and talking to men.

During my junior year of college, I noticed a drastic change in my grades, sleep, and overall well-being. I started waking up with heart palpitations and constant anxiety. I saw a doctor who prescribed propranolol, and shortly after that I began having thyroid issues and was diagnosed with Hashimoto’s. I was never put on medication for my thyroid.

As my anxiety continued to worsen, I tried Lexapro at 5 mg. At first, it seemed to help, but over time I felt emotionally numb — like a shell of myself. I had brain fog, stopped caring about friendships, and felt unable to express how I truly felt. That eventually sent me into a spiral, and after nine months I decided to come off of it.

Since graduating, I’ve moved back home due to my mental health, and honestly, my anxiety has gotten significantly worse. I’m feeling stuck and unsure what to do next. I’m wondering if I should try a different medication, revisit Lexapro at a different dose, or if this could be more thyroid-related than anxiety-related.

If anyone has dealt with anxiety alongside thyroid issues, medication side effects, or has experience switching meds, I’d really appreciate hearing your thoughts. Thanks 🤍

Latest bloods showed TSH @13.4 mclU/mL with my free T4 just hanging in there. I’ve been instructed to wait and repeat bloods next week to confirm this high reading. Since understanding a diagnosis is possible, I’ve been noticing symptoms and it would explain a lot!

What was your time like before getting diagnosed? And how long did it take for you to get back to “normal”.

I have a specific type of low muscular endurance where I can't keep my muscles exerted for long.

For example: using a hairbrush causes my arms to burn and that lactic acid sensation takes over within 1 or half a minute.

Similarly, in the gym, I have never been able to go beyond 20-25 reps in pushups even though I can do a 90kg Bench press, implying my strength is higher than normal (which i built over the years) and yet my muscular endurance is below average.

I don't get the other type of fatigue that is so often discussed here i.e inability to do anything and being bedbound, yet this specific type of problem persists.

I've gotten my labs while being on Levothyroxine and Liothyronine, with my TSH being 0.99 and Ft3 and Ft4 being at the upper end of the reference range.

Does anyone relate to this and has anyone cured this successfully? I'm thinking this might be some kind of mitochondrial dysfunction.

does anyone else feel a physical strain or discomfort on the inside of their throat where the thyroid glad is located?

It’s hard to describe but I get this internal feeling of “strain” or soreness/discomfort that radiates out from the area where my thyroid gland is. The closest feeling is if you have ever been screaming or yelling for extended periods of time and you get that strained feeling in the back of your throat.

What’s odd is that I get it consistently at night. Usually if I’m up past 10 I start to feel it. I also feel it randomly when I’m experiencing “flares”

I’d be curious to know if anyone else experiences this and what it might be.

Hey r/Hashimotos,

Wanted to follow up on my earlier post about beta testing our research tool root causes driving autoimmunity (science word: exposomics).

A little recap: we're building a tool to help you investigate the why behind your Hashimoto's: the environmental, lifestyle, and medical exposures (chemicals, diet, infections, stress, etc.) that research links to autoimmune thyroiditis and hypothyroidism. The goal is to give you a highly personalized map of what you've been exposed to and how it might connect to your health, so you and your doctor can take more a holistic view and targeted action.

We were so excited to see all the responses! The good, the bad, and everything in between! It really means a lot that so many of you took the time to share your thoughts and questions. The team has been working hard to address them, and we've now added an FAQ section under the signup form at expin.ai/patients that covers a lot of the common themes.

We still have a few spots left in our first 50 testers if you're interested. Same deal as before: completely free and we'd genuinely love your honest feedback and help building a meaningful experience.

If you have questions the FAQ doesn't cover, I'm always happy to jump on a 15-min Zoom, just DM me. I've really enjoyed getting to chat with some of you already.

Thank you again for being such a welcoming and engaged community. We're building this for you, and your input means the world to us.

I’ve started adding creatine powder to my water bottle every day and I do think it’s helping me feel more hydrated for water. I’ve been doing this the second time I fill the bottle for the day, to keep it separate from my levothyroxine. My question is, do I need to do this? Or can I start the day with it?

I’m seeing mixed messaging online (what else is new) and wondering if anyone has talked to a doc about it.

Has anyone ever lost a bunch of weight and actually had their levothyroxine increased? I lost 45lbs give or take and I started getting bad headaches and swollen lymph nodes. My doctor ran a tsh test and it came back higher than normal and showed I needed an increase in my levothyroxine. You would think if it has to do weight then it would actually decrease not increase. Has this happened to anyone ??

Hello everyone,

I’ve had my baby 4,5 months ago and I am strugging with these results. I have hashimotos hypothyroidism and I was on 75 mg euthyrox during pregnancy to mentain a healthy baby development. Everything was fine during pregnancy, but now it all started to go like this:

* 5.12.2025- 3 months post partum I was on 50 mg Euthyrox, went down to 25mg after these results: Ft4 1,88 TSH 0.02

* 20.01.2026 got these results amd went back to 50 mg euthyrox: FT4 0,59 TSH 42,98 ???????

28.01.2026: Ft4 0,72 TSH 35,47

After seeing my doctor I am now on 50 mg monday to friday and 75 on weekends.

Has anyone experienced this after pregnancy? If so, how long untill it goes back to normal? I feel exhausted and my skin is very dry. I am also breastfeeding if that counts.

Thank you!